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JFK Partners: Information about Disabilities

Information
about Disabilities
The mission of JFK Partners is to promote the independence,
inclusion, contribution, health, and well-being of people with
disabilities and their families through consumer, community, and
university partnerships. Through our work, we often find that there
are numerous definitions of the concept of "disability."
Below is a sampling of the many definitions of "disability."
1. International Classification of Impairments, Disabilities,
and Handicaps (ICIDH)
Reference: International Classification of Impairments,
Disabilities, and Handicaps: A manual of classification relating to
the consequence of disease (1976) World Health Organization, Geneva.
Definition: in the context of health experience, a disability is
any restriction or lack (resulting from an impairment) of ability to
perform an activity in the manner or within the range considered
normal for a human being.
Characteristics: Disability is characterized by excesses or
deficiencies of customarily expected activity performance and
behaviour, and these may be temporary or permanent, reversible or
irreversible, and progressive or regressive. Disabilities may arise
as a direct consequence of impairment or as a response by the
individual, particularly psychologically, to a physical, sensory, or
other impairment. Disability represents objectification of an
impairment, and as such it reflects disturbances at the level of a
person.
Disability is concerned with abilities, in the form of composite
activities and behaviours, that are generally accepted as essential
components of everyday life. Examples include disturbances in
behaving in an appropriate manner, in personal care (such as
excretory control and the ability to wash and feed oneself), in the
performance of other activities of daily living, and in locomotor
activities (such as the ability to walk).
2. Americans with Diabilities Act (ADA), Public Law 101-336,
Reference: Americans with Disabilities Act, Public Law 101-336
July 26, 1990 104 STAT. 327, SEC. 3. Definition. 42 USC 12102, SEC.
201. Definition. 42 USC 12115. Reference: TAM I-2.2(a)(i), TAM
II-2.2000, TAM III-2.2000, 28 CFR 35.104
Definitions. 42 USC 12102, SEC. 201 Disability. The term
disability means, with respect to an individual A. a physical or
mental impairment that substantially limits one or more of the major
life activities of such individual; B. a record of such an
impairment; or C. being regarded as having such an impairment.
DEFINITION. 42 USC 12115. (2) Qualified individual with a
disability. The term qualified individual with a disability means an
individual with a disability who, with or without reasonable
modifications to rules, policies, or practices, the removal of
architectural, communication, or transportation barriers, or the
provision of auxiliary aids and services, meets the essential
eligibility requirements for the receipt of services or the
participation in programs or activities provided by a public entity.
A physical impairment is defined by the ADA as: "Any
physiological disorder or condition, cosmetic disfigurement, or
anatomical loss affecting one or more of the following body systems:
neurological, musculoskeletal, special sense organs, respiratory
(including speech organs), cardiovascular, reproductive, digestive,
genitourinary, hemic and lymphatic, skin, and endocrine."
Neither the statute nor the regulations lists all diseases or
conditions that make up "physical or mental impairments,"
because it would be impossible to provide a comprehensive list,
given the variety of possible impairments.
A mental impairment is defined by the ADA as: "[a]ny mental
or psychological disorder, such as mental retardation, organic brain
syndrome, emotional or mental illness, and specific learning
disabilities." Neither the statute nor the regulations list all
diseases or conditions that make up "physical or mental
impairments," because it would be impossible to provide a
comprehensive list, given the variety of possible impairments.
An impairment is a "disability" under the ADA only if
it substantially limits one or more major life activities. An
individual must be unable to perform, or be significantly limited in
the ability to perform, an activity compared to an average person in
the general population.
3. The Developmental Disabilities Act (DD Act)
Reference: The Developmental Disabilities Act, U.S. Code
Citation: 42 USC 6000 et seq., HDS Regulations: 45 CFR 1385-1388,
Sec. 102. Definitions, Title I-Programs for Individuals with
Developmental Disabilities, Part A - General Provisions, Number 8
A-E.)
DEVELOPMENTAL DISABILITY.
The term `developmental disability' means a severe, chronic
disability of an individual 5 years of age or older that -
A. is attributable to a mental or physical impairment or
combination of mental and physical impairments;
B. is manifested before the individual attains age 22;
C. is likely to continue indefinitely;
D. results in substantial functional limitations in three or
more of the following areas of major life activity -
(i) self-care;
(ii) receptive and expressive language;
(iii) learning;
(iv) mobility;
(v) self-direction;
(vi) capacity for independent living; and
(vii) economic self-sufficiency; and
E. reflects the individual's need for a combination and
sequence of special, interdisciplinary, or generic services,
supports, or other assistance that is of lifelong or extended
duration and is individually planned and coordinated, except that
such term, when applied to infants and young children means
individuals from birth to age 5, inclusive, who have substantial
developmental delay or specific congenital or acquired conditions
with a high probability of resulting in developmental disabilities
if services are not provided.
4. Individuals with Disabilities Education Act (IDEA)
Reference: U.S. Department of Education. Federal Register/Vol. 64
No. 48/Friday, March 12, 1999/Rules and Regulations, Section 300.7
Child with a Disability
Child with a Disability
(a) General.
(1) As used in this part, the term child with a disability
means a child evaluated in accordance with Secs. 300.530- 300.536
as having mental retardation, a hearing impairment including
deafness, a speech or language impairment, a visual impairment
including blindness, serious emotional disturbance (hereafter
referred to as emotional disturbance), an orthopedic impairment,
autism, traumatic brain injury, an other health impairment, a
specific learning disability, deaf-blindness, or multiple
disabilities, and who, by reason thereof, needs special education
and related services.
(2)(i) Subject to paragraph (a)(2)(ii) of this section, if it
is determined, through an appropriate evaluation under Secs.
300.530- 300.536, that a child has one of the disabilities
identified in paragraph (a)(1) of this section, but only needs a
related service and not special education, the child is not a
child with a disability under this part. (ii) If, consistent with
Sec. 300.26(a)(2), the related service required by the child is
considered special education rather than a related service under
State standards, the child would be determined to be a child with
a disability under paragraph (a)(1) of this section.
(b) Children aged 3 through 9 experiencing developmental delays.
The term child with a disability for children aged 3 through 9
may, at the discretion of the State and LEA and in accordance with
Sec. 300.313, include a child--
1) Who is experiencing developmental delays, as defined by the
State and as measured by appropriate diagnostic instruments and
procedures, in one or more of the following areas: physical
development, cognitive development, communication development,
social or emotional development, or adaptive development; and
(2) Who, by reason thereof, needs special education and related
services.
5. Section 504 of the Rehabilitation Act of 1973, Public Law
93-112
Reference: Rehabilitation Act of 1973, Public Law 93-112, Statute
29 USC, Section 794.Disabilities Covered under Section 504). The
following was taken from: http://www.ed.gov/offices/OCR/hq5269.html
DISABILITIES COVERED UNDER SECTION 504 The ED Section 504
regulation defines an "individual with handicaps" as any
person who (i) has a physical or mental impairment which
substantially limits one or more major life activities, (ii) has a
record of such an impairment, or (iii) is regarded as having such an
impairment. The regulation further defines a physical or mental
impairment as (A) any physiological disorder or condition, cosmetic
disfigurement, or anatomical loss affecting one or more of the
following body systems: neurological; musculoskeletal; special sense
organs; respiratory, including speech organs; cardiovascular;
reproductive; digestive; genitourinary; hemic and lymphatic; skin;
and endocrine; or (B) any mental or psychological disorder, such as
mental retardation, organic brain syndrome, emotional or mental
illness, and specific learning disabilities. The definition does not
set forth a list of specific diseases and conditions that constitute
physical or mental impairments because of the difficulty of ensuring
the comprehensiveness of any such list. The key factor in
determining whether a person is considered an "individual with
handicaps" covered by Section 504 is whether the physical or
mental impairment results in a substantial limitation of one or more
major life activities. Major life activities, as defined in the
regulation, include functions such as caring for one's self,
performing manual tasks, walking, seeing, hearing, speaking,
breathing, learning, and working.
The impairment must have a material effect on one's ability to
perform a major life activity. For example, an individual who has a
physical or mental impairment would not be considered a person with
handicaps if the condition does not in any way limit the individual,
or only results in some minor limitation. However, in some cases
Section 504 also protects individuals who do not have a handicapping
condition but are treated as though they do because they have a
history of, or have been misclassified as having, a mental or
physical impairment that substantially limits one or more major life
activities. For example, if you have a history of a handicapping
condition but no longer have the condition, or have been incorrectly
classified as having such a condition, you too are protected from
discrimination under Section 504. Frequently occurring examples of
the first group are persons with histories of mental or emotional
illness, heart disease, or cancer; of the second group, persons who
have been misclassified as mentally retarded. Persons who are not
disabled may be covered by Section 504 also if they are treated as
if they are handicapped, for example, if they are infected with the
human immunodeficiency virus.
WHAT ARE HIDDEN DISABILITIES? Hidden disabilities are physical or
mental impairments that are not readily apparent to others. They
include such conditions and diseases as specific learning
disabilities, diabetes, epilepsy, and allergy. A disability such as
a limp, paralysis, total blindness or deafness is usually obvious to
others. But hidden disabilities such as low vision, poor hearing,
heart disease, or chronic illness may not be obvious. A chronic
illness involves a recurring and long-term disability such as
diabetes, heart disease, kidney and liver disease, high blood
pressure, or ulcers. Approximately four million students with
disabilities are enrolled in public elementary and secondary schools
in the United States. Of these 43 percent are students classified as
learning disabled, 8 percent as emotionally disturbed, and 1 percent
as other health impaired. These hidden disabilities often cannot be
readily known without the administration of appropriate diagnostic
tests.
6. Developmental Disabilities Services, Colorado Department of
Human Services
Reference: General Comparison of Community Services,
Developmental Disabilities Services, Colorado Department of Human
Services.
Developmental Disability
Developmental disability means a disability that is manifested
before the person reaches twenty-two years of age, which constitutes
a substantial disability to the affected individual, and is
attributable to mental retardation or related conditions which
include cerebral palsy, epilepsy, autism, or other neurological
conditions when such conditions result in impairment of general
intellectual functioning or adaptive behavior similar to that of a
person with mental retardation. Unless otherwise specifically
stated, the federal definition of "developmental
disability" found in 42 U.S.C. sec. 6000, et seq., shall not
apply.
Impairment of general intellectual functioning means that
the person has been determined to have an intellectual quotient
equivalent which is two or more standard deviations below the mean
(70 or less assuming a scale with a mean of 100 and a standard
deviation of 15), as measured by an instrument which is
standardized, appropriate to the nature of the person's disability,
and administered by a qualified professional. The standard error
measurement of the instrument should be considered when determining
the intellectual quotient equivalent. When an individual's general
intellectual functioning cannot be measured by a standardized
instrument, then the assessment of a qualified professional shall be
used.
Adaptive behavior means that the person has overall
adaptive behavior which is significantly limited in two or more
skill areas (communication, self-care, home living, social skills,
community use, self-direction, health and safety, functional
academics, leisure, and work), as measured by an instrument which is
standardized, appropriate to the person's living environment, and
administered and clinically determined by a qualified professional.
Similar to that of a person with mental retardation, in
regard to adaptive behavior, means that a person's adaptive behavior
limitations are a direct result of or are significantly influenced
by the person's substantial cognitive deficits and may not be
attributable to only a physical or sensory impairment or mental
illness.
Developmental Delay
Developmental delay means the slowed or impaired development of a
child who meets one or more of the following:
1. A child who is less than five (5) years of age at risk of
having a developmental disability because of the presence of one or
more of the following:
a) Chromosomal conditions associated with mental retardation,
b) Congenital syndromes and conditions associated with delay in
development,
c) Metabolic disorders,
d) Prenatal and perinatal infections and significant medical
problems,
e) Low birth weight infants weighing less than 1200 grams, or
f) Postnatal acquired problems known to result in significant
developmental delays.
2. A child less than five (5) years of age who is delayed in
development by 1.5 standard deviations or more in one or more of the
following areas:
a) Communication,
b) Self-help,
c) Social-emotional,
d) Motor skills,
e) Sensory development, or,
f) Cognition.
3. A child less than three (3) years of age who lives with one or
both parents who has or have a developmental disability.
JFK
Partners
University of Colorado Denver
13121 E. 17th Ave, C234
Aurora, CO 80045

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